This is the section where I’ll be talking more about my specific treatments 🙂
Diary of events so far
and also blood test results for those of you who are interested in blood counts and cancer marker counts
Fri 22nd August: Echocardiogram (Middlemore)
Wed 27th August: Oncology team appt (Auckland Hospital)
Thursday 28th August pre chemo blood test neutrophils 4.0. CA15-3 cancer marker 59 (normal non cancerous bench mark is 0-30) this is about average for the sort of cancer I have got.
Fri 29th August: first chemo session (Auckland Hospital)
Fri 5th September: Blood test neutrophils 0.3
Mon 8th September: appointment with breast surgeon (just preliminary – no surgery for at least 5 months possibly 8 months depending on how under control gertrude is)
Fri 12th September: preadmission appointment for porta cath operation blood test for neutor phils had to be over 2 for them to operate was 3.0
Sat 13th September: Hair today -gone tomorrow!
Mon 15th September: Portacath Operation
Wed 17th September oncology assessment with drs
Thurs 18th pre-chemo blood tests neutrophils 4.0 cancer marker CA15-3 65
Fri 19th September 2nd round chemo
Wed 24th September went to hospital -admitted neutrophils <1.0
Mon 29th September got out of hospital – neutrophils 4.0
Wed 8th October oncology assessment
Thurs 9th October blood test neutrophils 2.43
Fri 10th October 3rd round chemo
Tues 14th October – evening visit to Middlemore ED to be rehydrated due to nausea and vomiting. in for appox 4hours neutrophils 4.0
Fri 17th October usual midcycle blood test neutrophils 0.36 (neutropenic)
Tues 21st October acute oncology day stay visit for approx 3 hours due to more diarrhea and worries due to neutropenic condition blood test showed neutrophils were 1.06 still neutropenic but climbing naturally so was allowed home.
Thurs 30th October pre-chemo blood test neutrophils had jumped to 6.03 (highest they have been in this whole process)
Fri 31st October 4th cycle chemo
Fri 7th November midcycle blood test neutrophils 0.23 (neutropenic again)
Thurs 20th November prechemo blood test neutrophils 4.36
Fri 21st November 5th cycle chemo
Friday 28th November midcycle blood tests
Monday 1st December CT scan of abdomen
Friday 5th December consultation with radiation oncologist
Wednesday 10th December oncology assessment
Thursday 11th December blood tests
Friday 12th December last taxotere and herceptin chemo yay!!
Monday 22nd December breast surgeon appointment
Tuesday 23rd December set-up and simulation for radiation
Later that day hospitalised for portacath infection Started on IV antibiotics (2g flucloxicillin) allowed day release between IVs
30th December Portacath surgically removed
31st December Blood transfusion (red blood cells due to low haemoglobin)
1 January 2009 Released from hospital after 10 days IV antibiotics with week long course of 500mg flucloxicillin capsules
8th January finished antibiotics course
9th January Start radiation also return to hospital as portacath site infection has flared up again.
10th January started on 2g flucloxicillin IV again
12th-14th January – Radiation (still hospitalised for infection) also session with radiotherapy nurse to check I knew what to do re radiation side effects radiation is once a day 5 days a week 20x to breast 25x to axillary and supraclavicular nodes
13th January – Radiation postponed due to not being able to get within tolerances when lining me up for radiation
14th January – Remapped for radiation and visited by an infectious diseases doctor who recommends that I be started on a different antibiotic. Herceptin chemo administered to me by ward staff.
15th January – On weekend release to see if new antibiotic in tablet form works (on 3 tablets (450mg) clindamycin)
16th January – return to hospital
17th January – reassessment of antibiotic effect on infection started on IV cefuroxime Continuation of radiation
18th January-24th January – IV antibiotic and radiation while in hospital
27th January- 12 th February – Radiation
6th February – herceptin
13th February-20th February – re-admission to hospital with infection of portacath site IV antibiotics
18th February – finish radiation
27th February, 20th March, 9th April Herceptin
21st April – mastectomy with axillary nodes removal
28th April -Breast Surgeon post surgery appointment – got pathology results from surgery – no malignancy evident in breast or axillary nodes.
29th April – discussed results with Oncologist
continued 3 weekly herceptin 1st May,22nd May, 12th June
18th June – Vascular surgery checkup to check portacath site is healing properly
Herceptin 3rd July, 24th July
Medical Oncology appointment bought forward to 11th August (from 1st )because of me getting pain in my nodes they dont think its anything but say I can have a CT scan to make sure
14th August – final herceptin!
15th September – CT Scan
6th October – medical oncology appointment with Dr H – he says that I have got an internal mammory node showing up on CT scan and just from his physical exam of my chest he says its cancerous. He’s referring back for more radiation
this is in serious need of updating !! y0u’ll need to read archival posts from october ’09 0nwards to see what happened next