This is what I wrote on my ‘Get out Gertrude’ Facebook page 2 weeks ago:
“running out of time to do blog posts at the moment – I know I should be taking it easy starting new chemo but since we got back from our second mini break my week has looked like this… Monday: up to Cancer Society to do 2 hour relaxation course, came home had nap, visit from my sister. Tuesday: ECG and onc appt to get go ahead for chemo, Wednesday: Chemo Thursday: theoritically a stay at home and rest day but had visits from Cancer society liaison nurse , phone calls from the hospital and a vist from my friend Jayne. tomorrow (Friday): we have meeting with a lawyer to redo our wills, and then back up to the hospital for a pre-admit visit to discuss putting new portacath in as I am running out useable veins for chemo etc. Saturday: I have a planning day for my committee work with Breast Cancer Aotearoa Coalition. This will just be sitting & talking so I think I can manage it. Sunday may be an actual rest day!!! Monday: will either be relaxation course then portacath op or just portacath op depending on when they schedule it. Wont find out til after preadmit visit tomorrow. Tuesday: going to uni for the one paper I am sitting this semester. Wednesday: Chemo, Thursday: hopefully a rest day, Friday: meeting with family support services (hospice) to talk more about what to put in place for YD somewhere in there I may fit in a short blog post but I cant guarantee to find the time”
then this happened:
“I had a bit less routine outcome to my port insertion yesterday. I had a touch of acid reflux during the operation (under general anaesthetic) and some went into my lung. I was kept in overnight and until my oxygen saturation stabilised. they also have me on antibiotics to make sure if there is any damage to my lungs it doesnt get infected. They say it should rectify itself over the next few days but I have to take things easy. Still have to go back to hospital tomorrow for chemo – feel I’ve been living there most days the last two weeks but at least now my chemos will be easier and they wont be trying 6 times to find a workable vein”
Because of the irritation in my lung I had quite a cough when I went to chemo last Wednesday so I had to go and get the all clear from my old friends, the doctors at Acute Oncology, before chemo could proceed.
My Friday meeting with the hospice family support service went well and I feel like we are getting things in place for YD.
I dont whether it was the combination of high strength antibiotics and the chemo but by last weekend I felt absolutely shattered. I had intermittent headaches and cold clammy sweats and slept most of Saturday and Sunday. Sunday also bought the delights of vomitting and diarrhea. We narrowly missed having to go to the hospital to get them to check me out.
By Monday I was coming right and on Tuesday I felt almost normal and managed to go to my university class and have a really good day. And then of course Chemo rolled around again on Wedenesday. – I have managed to get this changed to Thursdays from next week on as it suits my pool of ‘chemo chaffeurs’ better.
Yesterday (Thursday) should have been a rest day but I had made the mistake of not taking my pain meds refill in and as the initial prescription was filled at the hospital pharmacy I have to get the refills there. so I took myself up on the train to get them. From the next prescription I will fill them at our local pharmacy as this is the second time I have forgot and it is just too far to go just to get meds. Unfortunately they will only give me 10 days worth at a time.
Today although I can feel the chemo side effects kicking in a bit of nausea, a lot of fatigue etc, but by setting my laptop up on my bed I have been able to catch up on blog posts and other correspondence and still have enough energy to go out with OH to a work function tonight.