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  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
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    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
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  • SUSAN’S ARMY

    No Princess Alone button

Results or lack thereof

I had my usual 3 weekly oncology assessment yesterday and got my bonescan results from last week which showed absolutely nothing of cancer interest. Which is what we had hoped for…but….

Along with the good news came a touch of bad.  My tumour markers which have always been low have shot up by 60 points from 91 to 155 in the last 3 weeks.  Dr H was very proactive and when he heard I hadn’t heard anything about my CT scan be scheduled – it was supposed to take place before my next oncologist assessment appointment on February 17th – he jumped on the phone to Middlemore and demanded they schedule it then and there while I was in the office.  so I have a CT next Wednesday at 10am.  He is away the following week and even thought he is unlikely to have the official report – he meets with the tumour review team on Thursday afternoon and will be able to access and discuss with the radiologists whether or not things have progressed further.  He only approved the Adriamycin chemo for today and next week and will let me know the new plan before he goes away.

The tumour markers combined with more pain over the last couple of weeks tend to make us believe that at best the tumours have not shrunk and stayed the same size but we think there has probably been progression/growth for them to jump that much.

We always knew Adriamycin was more of a stop gap measure that was unlikely to work for very long but I am disappointed that only after 3 cycles (9 weeks) it looks like it hasnt worked at all.  We are starting to run out of chemo options and I had hoped for a little longer on this one.

We should know more by the end of next week – I promise to do another blog post then

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4 Comments

  1. Oh Jenny. This makes me so mad. Mad at cancer. Mad at tumors. Mad at a disease that has already taken too many friends and family members.
    Sending you all my love, prayers, and sushi temptation vibes your way, my dear friend.

    Reply
  2. Juli

     /  January 26, 2012

    I’m really hoping they come up with something for you. I know this is so difficult for you, keeping you close in thought, you take care of yourself and rest when you can. Love ya xxoo

    Reply
  3. Thinking of you, rest up this weekend. Sending lots and lots of good vibes your way Jenny

    Reply
  4. 😦 I’m sorry to hear you’ve been in pain. Pain SUCKS. I hope they can sort something out for that for you. I’m glad your Dr H is proactive though, and is pushing things along. Best of luck for good scan results, and effective (and long-lasting!) treatments.
    Much love.

    Reply

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