Well my neutrophil count was finally above 1 this week – 1.26 to be exact, so chemo was given yesterday (Thursday) ,thank goodness!!, without any further need for blood test to confirm yesterday or checking with my oncologist to decide whether to proceed.
I saw Dr H on Wednesday and he decided to cut the dose by 20% from 50 mg to 40mg which will hopefully keep my counts a little more stable and closer to the 1 mark but he has also said that if they are stable and I am not feeling sick that he wants me to have chemo if my count is above 0.5 because I cant keep missing two in a row like I did over Christmas and New Year. Usually the nurse specailist make the call but he has said in future if there is any doubt of whether or not to give me chemo with low blood counts it needs to be discussed with him and he will make the call.
Good news is my tumour markers have fallen slightly with the little I have had so we are hopeful that more consistent doses at 40mg will continue this downward trend at least for the moment.
Dr H has scheduled a CT scan for the middle of my next cycle (beginning of February) to see what is happening and he has also aksed for a bone scan to be done within the next month just to confirm the pain I am experiencing in my back is just all from the tumour pressing on nerves and no cancer in the ribs themselves. Nothing showed up in the CT scan but it is not sensetive to smaller bone metastases so we are just doing a Bone Scan to confirm.
The new regime of 3 long release painkillers seem to be working well to make me comfortable most of the time, and my gym work is paying off with my blood pressure while never really high has to returned to its more normal and healthy (for me) reading of 120/80 so I am feeling pretty good about things at the moment.
We have a plan and its seems to be working so we will stick with it till it doesn’t anymore 🙂