The holiday I am going on next week is a very important one. It has been two years since we first came up with the plan and because of treatments and other time constraints we couldn’t do it until now. I have pushed my oncologists to allow me to take this trip but it is not ‘my’ holiday. It is YD’s. She wanted to go to Dreamworld and she wanted Mummy to be the one that took her. Because of her autistic tendencies , as far as she was concerned it wasnt going to happen unless Mummy was coming with her. So we have made it happen, OH and MD are coming to do a lot of the actual looking after her at the theme parks(Dreamworld, Seaworld and Australia Zoo – MD will go on a lot of the rides with her) because I know I will just not be able to keep up with her.
With the amount of fatigue I am feeling I am worried about how fast, or not, it will wear off on my week off xeloda. People have been advising me I can hire wheelchairs and/or mobility scooters. I really dont want to go down that route but I might have to – I really hate that thought!! I will push myself because this is such an important holiday for YD but I am concerned about how I will handle it.
The things I want to do for myself on this holiday are meet up with P another IBC lady, see my sister and niece and meet up with old family friends who used to live down the road from us. I also hope to have a few minutes each day to myself to swim in the apartments indoor heated pool to get my exercise/fitness back up. With the issues with the xeloda side effects on my feet there are not a lot of other exercise options. I also want to spend a few minutes each day alone on the beach where I can just sit and breath in and out. I doubt the beach will be deserted but by alone I mean without anyone I know. Hopefully OH and I will get a chance to do a few things by ourselves if we leave YD with MD but it is very dependant on YD’s behaviour. She is so excited about this trip but I am so aware that that excitement can turn, very easily, to over-stimulation, and overwhelm her.
This holiday is going to be hard work for the rest of us, but if we can pull it off and give YD the holiday of a lifetime it will be worth it.