• Pages

  • comments

    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
  • Enter your email address to follow this blog and receive notifications of new posts by email.

    Join 59 other followers

  • visitors

  • SUSAN’S ARMY

    No Princess Alone button

I’m not a star

I named my previous post about the web video series “Video Stars” and have publicised the videos on facebook, twitter and in our local paper.  You can read the online version of the article here – Papakura Courier

I have had a lot of praise as well as people joke that I am famous, and to tell you the truth it makes me feel a little uncomfortable.  I don’t do this sort of thing to build myself up and make myself look good but just because I think it needs to be done.  People need to know that all breast cancer isnt the same, and I am passionate about making that happen.

If you are on Facebook or Google+ you will have seen my update :-                         “Nobody who knows me well is going to be that surprised that I joined the committee of Breast Cancer Aotearoa Coalition last night – these are the people who organised the videos I was in.  They are willing to support me in stuff I want  to do around IBC in New Zealand and I am also doing something constructive for the wider breast cancer community in New Zealand”.

They are a national organisation of volunteers doing things around breast cancer that I really believe in , such as the webvideos.  They act as an umbrella group for  a lot of different breast cancer organisations and are very pro-active.  I feel like I have found a bunch of like-minded people and that with working with them I can achieve some of my own objectives as well around publicizing IBC.

Some people worry about me over-committing myself especially with the level of fatigue I am feeling under treatment, but getting involved with this sort of endeavour, and  likewise my uni studies, makes me feel like I am doing something worthwhile and not just sitting around being a “cancer patient”

The BCAC (Breast Cancer Aotearoa Coalition) committee is aware of my limitations and are just happy to have me onboard with whatever I can give them.  They are particularly interested in the fact I am an avid user of Social Media (Facebook, Twitter, Blogging,  and now Google+)  and even though I still think of myself as somewhat of an amatuer they are interested in my input in those areas.

I am not a star – but I do plan on continuing to be a starter.

 

Advertisements
Next Post
Leave a comment

2 Comments

  1. Lynette Wright

     /  July 15, 2011

    You have a strong message to put across Jenny and I am pleased that someone with your drive is out there doing this and passing on very important, detailed,factual information to women and men alike. Keep up the hard work you are doing in pushing the message.

    Reply
  2. Marti

     /  July 15, 2011

    You are doing wonderful things and with Facebook and other media, you are getting the word out about IBC as well as supporting those who have other kinds of breast cancer. I admire you very much and hope that your health allows you do continue to do these things as well as just some things you would like to do. Thanks a million, Jenny!

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: