• Pages

  • comments

    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
  • Enter your email address to follow this blog and receive notifications of new posts by email.

    Join 61 other followers

  • visitors

  • SUSAN’S ARMY

    No Princess Alone button

Video stars

Last night I went to the Breast Cancer Aotearoa Coalition launch of the web video series I took part in, “Kiwi Stories of Breast Cancer”.  It took place in a movie theatre with the videos shown in a continuous screening.  I am glad that I had managed to watch myself in the videos on the computer before the launch as seeing myself on the big screen and seeing how it was edited together was quite daunting, and it meant I had processed some of that feeling before last night.

Even if I hadn’t been actively involved in these videos – I think they are amazing !!  Each video concentrates on a certain aspect  of the breast cancer journey and although they are short pieces approximately 5-6 minutes long each they cover a wide range of personal experiences and give some medical information as well.

I have put links to the whole series on the right side of the page but I will put the links to the whole series and some of the ones that feature my 2c worth about my experience with IBC.  I encourage you to watch the whole series and share it with every one you know.

Kiwi Stories of Breast Cancer

Diagnosis

Getting through Breast Cancer

Secondary Breast Cancer

The only ones of the series I don’t feature at all in are the ‘hormone therapy’ one and the ‘clinical trials’ and the ‘life after breast cancer’ because those are things I haven’t experienced.

I want to applaud all the other women and the man who took part in these videos, most of whom I have never met although I did meet a couple of them at the screening last night.  I especially think Brian was wonderful to put his story out there to educate men about Breast Cancer. Even though I never met him I vastly admire him for his participation in this project.

Last night we were informed that Brian had died 3 weeks ago.

Thank you Brian for this legacy, this gift of your experiences. May you rest in peace.

 

Advertisements
Leave a comment

1 Comment

  1. NC

     /  July 7, 2011

    I came to your sites after watching you on the videos. Thank you for sharing so much. I’ve been reading your blog two days and already, your blog has already helped me a lot. I was diagnosed with BC recently and face surgery soon. Your words help me get some perspective and a sense of connection. Thank you.

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: