I had my oncology assessment appointment yesterday to get my next cycle of Xeloda.
My tumour markers continue to fall really fast ….but
due to the increased side effects last round its a possibility if they get worse this round we may have to cut the dosage back
My liver function test markers are also improving really well….but
they want to do another scan to make sure what the blood tests are showing is what is actually happening because apparently even when the blood tests are good there can be more metastatic activity.
I should be fine to go to Australia like we are planning with YD…..but
could I put off booking until the scan result is back in case we need more tests or need to change chemo?
To say yesterday’s appointment left me a little pissed off and frustrated would be an understatement. It just reinforced all the stuff I try not to think too much about. That controlling Gertrude is how I’m going to live the rest of my life, and that dictates what I can and can’t do to a large extent. ( although it could have been a touch of leftover PMS as well LOL)
After more discussion with the doctor it was decided that regardless of what the scan shows we won’t change treatment (if it is even necessary) until August – that we will try and make YD’s trip (with Mummy) happen regardless.
I asked for more panadol so they gave me this supply (480 tablets) …I dont think I am going to run out anytime soon LOL
Today has been a good day. even though it has been miserable weather. Lots of positive things have happened today.
I read a book that had nothing to do with ‘cancer’ or ‘social work’.
I bought myself some flowers, flowers always cheer me up
I made dinner… a slow cooking casserole that I put on this morning for consumption tonight … which is making the house smell delicious… all chicken and herby
I went to a ‘Sweet Louise’ meeting and actually met another recently diagnosed IBCer who lives only about 40 kms from me. We were both rapt to meet someone else with IBC and are planning to meet up in a couple of weeks time. She isn’t on the internet but I’m taking my laptop and mobile broadband t-stick out to show her some resources.
The ‘Sweet Louise’ meeting was also good for just venting some of the frustrations from yesterday and talking about life in general. And because all the women have metastatic breast cancer – they get it.