So far so good, I haven’t developed any major side effects so far, a little nausea – which is kept under contol by my old friend domperidone (Motillium), and tiredness. I can’t decide whether the tiredness is just a side effect or whether its just me being able to relax at home has lead me to give in to much needed catch up sleep. I have been so wound up lately , I am tempted to think it is a reaction to being home and relaxing as much as a side effect of medication. I have to get up early to take my medication 5 pills each morning and night approx 12 hours apart and after food so makes it easier to have them round breakfast and dinner. On Saturday I went back to bed and slept til 11 and then returned to bed with a splitting headache after lunch and slept half the afternoon as well and still managed to sleep that night.
Yesterday I went out for most of the day with OD and niece S and although getting a little ‘wonky’ after a long time on my feet, after finding a comfy armchair and having some light refreshments (and anti -nausea meds) I soon felt better.
This morning I managed to get some tidying done before my study group for our group assignment on NZ legislation arrived and managed to stay focussed during our meeting figuring out how to weave aspects of four different pieces of legislation (concentrating on 1 per person) into a scenario that we might encounter as Social Workers – section blah blah of this act works with section blah part blah blah of that act. Sort of fun as well as hard work – my cohorts may disagree on that one.
I don’t seem to be suffering from the expected diarrhea side effect yet and am hopeful that that will stay away, and also no major hand /foot syndrome but its early days yet. I am trying to be optimistic but I know that I will know the full extent of side effects by the end of the second cycle. I am spending the second half of the semester break trying to get ahead on all assignments due so that if things deteriorate sideeffects-wise I will still be able to get everything in on time.
That being said tomorrow is going to be taken up with ‘Gertrude related’ events. I am going to a ‘Sweet Louise’ meeting in the morning. and having a catch up session with a Cancer Society counsellor tomorrow afternoon.
On Wednesday I am spending the afternoon, evening with OD and we are going to Tea Royale at the Langham Hotel in Auckland. Just something I have always wanted to do. I can pretend to be ladylike for an afternoon LOL.
I think the biggest thing with having this chemo tablet regime is having it at home and trying to time manage it. Last night I almost forgot to have it after dinner and think I may have to put a little reminder in my phone to ring and remind me at 8.30 am and 8.30pm to check that I have had them every day. I’m sure I’ll get used to it but with not being an usual ‘breakfast person’ it feels quite an unnatural timetable to me