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    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
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    No Princess Alone button

Lights, camera, action – IBC awareness

I’ve got some good news in regards to IBC awareness here in New Zealand. I’ve been asked to be part of a video series put together by the Breast Cancer Aotearoa Coalition (Aotearoa being the Maori name for New Zealand) – the umbrella group for all Breast cancer groups in New Zealand including the New Zealand Breast Cancer Foundation – it is covering all aspects of diagnosis, treatement etc for all breast cancers but one of the specific things they wanted represented was someone with IBC – they had originally got in touch with the other IBC lady I know in Auckland who is a 10 year survivor but she didn’t want to do it and passed it on to me – filming of my interview takes place tomorrow and release of the video series will be in June – it will be accessible on line so I will let you all know when it is available. I love the fact they wanted someone with IBC specifically!!!!
I have talked to the director and in my interview we are going to concentrate on how I got diagnosed (because Inflammatory Breast Cancer is so different) and treatment and also the fact I blog about it, because that isn’t a tool that a lot of woman use in New Zealand to let family and friends know what is going on.
They are covering many different aspects of the Breast Cancer journey spectrum including what it is like for partners and they are also interviewing a man with Breast Cancer.   The interviews are about an hour long each and then will be editted to fit in with different topics diagnosis/ treatment/ coping strategies etc
I am so excited about this project and am so pleased to be part of it.
Just hoping I will represent the IBC community well – wish me luck!!
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  1. BRO

     /  March 25, 2011

    So I will have a Film Star Sister then !!


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