Well.. I got to see Dr H today. I don’t always see him a lot of the time I see one of his underlings. OH came with me and we had expected to hear that my CT results were back and fine….The thing is if they are fine they usually tell you straight off the bat. Along the lines of “Hi how are you?, well your CT was fine” sort of thing. When he wanted to examine me and wasn’t mentioning the scan at all, my heart started to sink. It wasn’t till I was off the bed and sitting back on the chair that he started to talk about it. Apparently there is a small spot in my right lung that hasnt been in previous scans – My oncologist want to review the scan with the radiologists to see if they need to take further action. I also mentioned that my ‘arthritic hip’ was playing up and that I was getting quite a lot of groin pain on my right side and that one of my top ribs was aching more than usual. I was putting this down to being more active – both getting more exercise and being busy getting YD settled into her new residential services house. Unfortunately Dr H decided it was worth checking my hip out again via bone scan – when they had diagnosed arthritis it was just by xray and CT. We are hoping that all the tests/ reviews come back clear and in the meantime he has booked the next couple of herceptins to carry on with but warned me that that may change depending on what they decide they see in the scans.
This leaves me hanging in limbo until the results come back. I deal with things much better when I know things for definite, even if it is bad news. We are still hopeful it isn’t going to be bad but it is hard to start planning what we are going to do in February when OH was having his holiday time off when we don’t know whether my 3 weekly schedule of herceptin is going to change or whether I will be required to be around for more tests/treatment. Arrggghhh Frustration!!!!
I have to admit that it is one of the things I struggle with in my post -Gertrude life. that my life has to revolve around, as one of the women from Sweet Louise put it , a medical diary… that our lives are ruled by when we need to be at the hospital for tests, for treatment, and oncologist appointments and that the rest of our lives have to be slotted around that.
Hopefully I will get the bonescan within the next couple of weeks and it will show just arthritic changes. If they also decide that the spot on my lung is nothing to worry about then it will just be business as usual with herceptin every 3 weeks and more tests in a few months.
Here’s hoping thats what happens.