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    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
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    No Princess Alone button

On a tight schedule

I just sent OD and MD my schedule for the week as they are used to me being more available to talk to than I am going to be from now on.  My schedule for this week looks like this.

MONDAY:           9-11 lecture 11.30-12.30 tutorial

TUESDAY:            9-11 lecture 11.30 oncology assessment 2.30-3.30 uni reading workshop

WEDNESDAY:     9-11 lecture 1.30-2.30 possibly tutorial also have to fit in blood test round midday at nearest lab to uni

THURSDAY:         10.30 – 11.30 uni time management workshop 2.30 chemo also OH and I are dropping one of our cars in for WOF and service

FRIDAY:                9-11 lecture 11.30-12.30 tutorial

I also sat down with YD when she was round here for the afternoon and explained  that I wouldn’t be seeing her as often while I am still having chemo and going to uni all the other days.  We planned out on the calendar when I was going to spend time with her and her house staff have written it all down in the house diary so that they can remind YD what is happening.  We have planned up until her birthday which is in her school holidays and my midsemester break.

Part of me looks at this schedule and thinks “Aaaarrrrgggghhhh!!!! What the hell have I set myself up for?”  but the other parts (the ruling majority) know this is what I need to do for me.  This tight schedule finishes on 22nd April and then its just herceptin every three weeks and I was not willing to not go fulltime at Uni when its only this short time frame that is affected.  Doing uni full time from the start also gives me more flexibility in the future if I need to drop back to part-time or miss a semester if I need more treatment further down the track.  The degree is full time for 4 years and if you do it part-time you need to complete it within 8 years.

Uni textbooks and reading resources 

We have had two days of orientation which were compulsory, and have been given our reading lists and told what textbooks to buy.  I printed out the reading resources thay have put on the university database for us and estimate I printed out over 100 pages just as well I like reading

I got a letter in the mail on Friday asking me to ring the radiology department to schedule my brain CT scan or to tell them I don’t need it.  I agree with the oncologist assessment that the headaches I have been having are probably not cancer related but I think I will go ahead with the scan just for peace of mind, that with me starting this course of study, that with the internal mammary node shrinking  nothing else is brewing anywhere else so I can just get on with my study. 

Once the vinorelbine chemo finishes in April I know my oncologist visits are going to be further apart (not the three weeks they are now) but with me already having one recurrence I know they will be keeping a close enough eye on me to pick anything up as soon as it starts developing.

I probably wont have time to write another post until next weekend when I can tell you all how I survived the first week

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