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    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
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  • SUSAN’S ARMY

    No Princess Alone button

I wasn’t offended

This was my response/comment to someone elses (an IBC survivors) blog post about the facebook bra colour message that went round and thought I would share my thoughts here as well. You can read her original post here

“I understand where you are coming from but as an IBC stage IIIc survivor currently having a recurrence to my internal mammary nodes – only 5 months after original treatment finished – I took part in this facebook meme and forwarded onto my family and friends. From my point of view it was about showing that raising awareness or keeping awareness in peoples minds wasn’t always about having to have a pink ribbon on your profile picture or writing seriously – it made my daughters and their friends think about their breasts for a minute and that is not a bad thing. I was wearing a bra with prothesis – I had a single mastectomy and axillary dissection – because I had gone out that day but most of the time when I am at home I am one-boobed no bra person and am comfortable in that that was the only choice I had to have a chance to beat this disease so although I wrote a colour I could have quite easily been write none
As the first sentence of the message said it was a bit of fun and that was the spirit in which I accepted it and I passed it on in that context as well – I had originally been sent it by another breast cancer survivor who is just out of treatment so not all breast cancer survivors were insulted or upset by this
While I agree especially for those of us in treatment the causes or cure are the biggest thing, for the general populace awareness is the way to get money and support for research. And I think this message was in the same vein as the bra decorating competitions that raise money for cancer research or the race/walks that encourage you to dress in fairy wings in silly costumes. It is a scary serious disease but it does not mean we can only deal with it in scary serious ways. ”

I do consider this sort of fun awareness campaign more harmless than the “bucket list” flyer that I wrote about previously which was purely a real estate marketing ploy (the post of which I have now made private as it has served its purpose.)

In other news my neutrophils had bounced back up (4.9) before chemo on Thursday and i think that is had a real bearing with how I feel post-treatment.  I went to a funeral on Friday (cancer sucks) and had not made the decision to go until I woke up Friday morning as usually the day after chemo I feel a bit seedy but I woke up yesterday morning feeling quite chirpy. I took my antinausea pills as a precaution but had a really active  day yesterday. Feeling a bit tired today but that has more to do with the fact that OD had friends around til 2am than any chemo aftereffects.  I am hopeful that this  reaction to the vinorelbine chemo continues. I can handle this weekly til April!

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1 Comment

  1. Ruth Coates

     /  January 8, 2010

    Yes, for some it hit too close to wounds not quite healed but still it was a fun way to keep awareness in the forefront. Jenny, I’m glad chemo went well for you this week. Keep on keeping on girl!Hope subsequent chemos do as well. And thanks for the TM gifts!:)

    Reply

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