This was my response/comment to someone elses (an IBC survivors) blog post about the facebook bra colour message that went round and thought I would share my thoughts here as well. You can read her original post here
“I understand where you are coming from but as an IBC stage IIIc survivor currently having a recurrence to my internal mammary nodes – only 5 months after original treatment finished – I took part in this facebook meme and forwarded onto my family and friends. From my point of view it was about showing that raising awareness or keeping awareness in peoples minds wasn’t always about having to have a pink ribbon on your profile picture or writing seriously – it made my daughters and their friends think about their breasts for a minute and that is not a bad thing. I was wearing a bra with prothesis – I had a single mastectomy and axillary dissection – because I had gone out that day but most of the time when I am at home I am one-boobed no bra person and am comfortable in that that was the only choice I had to have a chance to beat this disease so although I wrote a colour I could have quite easily been write none
As the first sentence of the message said it was a bit of fun and that was the spirit in which I accepted it and I passed it on in that context as well – I had originally been sent it by another breast cancer survivor who is just out of treatment so not all breast cancer survivors were insulted or upset by this
While I agree especially for those of us in treatment the causes or cure are the biggest thing, for the general populace awareness is the way to get money and support for research. And I think this message was in the same vein as the bra decorating competitions that raise money for cancer research or the race/walks that encourage you to dress in fairy wings in silly costumes. It is a scary serious disease but it does not mean we can only deal with it in scary serious ways. ”
I do consider this sort of fun awareness campaign more harmless than the “bucket list” flyer that I wrote about previously which was purely a real estate marketing ploy (the post of which I have now made private as it has served its purpose.)
In other news my neutrophils had bounced back up (4.9) before chemo on Thursday and i think that is had a real bearing with how I feel post-treatment. I went to a funeral on Friday (cancer sucks) and had not made the decision to go until I woke up Friday morning as usually the day after chemo I feel a bit seedy but I woke up yesterday morning feeling quite chirpy. I took my antinausea pills as a precaution but had a really active day yesterday. Feeling a bit tired today but that has more to do with the fact that OD had friends around til 2am than any chemo aftereffects. I am hopeful that this reaction to the vinorelbine chemo continues. I can handle this weekly til April!