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    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
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  • SUSAN’S ARMY

    No Princess Alone button

Oh damn…Odema

My right arm has been getting  progressively more tender and achy so I rung my breast surgeons nurse yesterday to see what she thought I should do about it.  I can access lymphodema therapists through the Cancer Society but with mine and OH’s trip to Cairns fast approaching I really needed to get it under control. 

She put me in touch with a private lymphodema therapist but she cant see me until the 16th, the Tuesday before we go.  The reason she can’t see me until then is she is about to go to America for a conference and I was really impressed that she bothered to ring me on her own time – about 8.30pm last night – to see if she could help give me any advice or massage tips over the phone before she went and to organise to see me as soon as she comes back.  When I see her she will  tape my arm to give added compression for the air flight as well as me wearing the compression sleeve.  I  got the compression sleeve today and the difference it made to the ache in my arm  was immediate. I will wear it all the time for the next couple of days apart from the night times and also get OH to do a light lymphatic massage – he has to stroke my arm like he’s stroking a cat ….Meow….Purr…LOL.  Hopefully this will ease the pain a little bit and make sure the lymphodema doesn’t get worse. R, my friend, at the corsetierre’s said my arm might be quite achy for the next 6 months to a year

As part of the ‘Pink Pilates’ programme I also have lymphatic exercises to promote lymphatic drainage but even though I was doing them the odema/pain was getting gradually worse.   BS had warned me that I was going to be prone to it but I didn’t realise it was going to effect me quite so soon. 

I was thinking about the fact that I may be dealing with this for the rest of my life and I think it is a small price to pay  for having a chance to live the rest of my life.

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