My right arm has been getting progressively more tender and achy so I rung my breast surgeons nurse yesterday to see what she thought I should do about it. I can access lymphodema therapists through the Cancer Society but with mine and OH’s trip to Cairns fast approaching I really needed to get it under control.
She put me in touch with a private lymphodema therapist but she cant see me until the 16th, the Tuesday before we go. The reason she can’t see me until then is she is about to go to America for a conference and I was really impressed that she bothered to ring me on her own time – about 8.30pm last night – to see if she could help give me any advice or massage tips over the phone before she went and to organise to see me as soon as she comes back. When I see her she will tape my arm to give added compression for the air flight as well as me wearing the compression sleeve. I got the compression sleeve today and the difference it made to the ache in my arm was immediate. I will wear it all the time for the next couple of days apart from the night times and also get OH to do a light lymphatic massage – he has to stroke my arm like he’s stroking a cat ….Meow….Purr…LOL. Hopefully this will ease the pain a little bit and make sure the lymphodema doesn’t get worse. R, my friend, at the corsetierre’s said my arm might be quite achy for the next 6 months to a year
As part of the ‘Pink Pilates’ programme I also have lymphatic exercises to promote lymphatic drainage but even though I was doing them the odema/pain was getting gradually worse. BS had warned me that I was going to be prone to it but I didn’t realise it was going to effect me quite so soon.
I was thinking about the fact that I may be dealing with this for the rest of my life and I think it is a small price to pay for having a chance to live the rest of my life.