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    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
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  • SUSAN’S ARMY

    No Princess Alone button

All going according to plan …

I had my appointment with the medical oncology team to assess me for my next herceptin which is due on Friday. They are quite pleased with how things are progressing with how Gertrude is responding to the radiation and although it was hard for them to see just how much improvement there was due to the dressings for the burns and redness that radiation has caused they could tell Gertrude had deflated some what and I could tell them I noticed that my nipple had popped back out – it had been inverted since Gertrude had first developed. I also found out I have lost another kilogram so I am now 10kgs lighter than I was after chemo, 4kgs lighter than when I first got diagnosed – probably all due to water retention being resolved as my lymphatic system starts to work better again. I’ll be half way to my goal weight by the time they have taken Gertrude off.
Its great to be back home again although my activity is severely curtailed by the radiation burns. Looking forward to a couple of weeks time when these are more resolved and I will be out and active more. Just had S for a visit. That’s the other thing about being at home I can see my friends more without them having to trek to the hospital. I saw my BRO and R his other half at the airport on Monday which I really liked. They were on their way home to Christchurch. I really enjoyed seeing them – thanks to MD who has been my chaffeur this week before starting back at university next week. OH took yesterday off for my hospital appointment and is hoping to take next week off as well, so I won’t be stuck at home too much thank goodness. Hopefully after that I’ll be able to start driving myself places. YD is visiting me at home this afternoon as I am not up to going out for our usual Wednesday afternoon tea and vibratrain, again MD is being the taxi for that.
I’ve been very pleased and flattered by response to the story in the NZ Woman’s Weekly.¬† I hope it will help other woman be aware and get diagnosed quickly if they have IBC.

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2 Comments

  1. BRO

     /  February 24, 2009

    We enjoyed seeing you & the other members of our extended family, and you look good ! ! It was good to catch up ,after a hectic weekend at Waiheke ! ! Must go as our OD has just arrived back from Sydney, with Dutyfree, and other things –

    TAKE CARE

    Reply
  2. ning

     /  February 27, 2009

    hey aunty.. finally read ur story (stole mum and dads copy, cos i wasnt in nz when it came out to buy a copy). i must say im impressed, and u really do suit short hair (not to say u didnt suit ur long hair cos u fully did). Hoping everything is going ok for you, and u get to enjoy ur holiday away soonish (ur maybe going away in april or may or something rite??) thinking of ya :):)

    Reply

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