I got let out of the hospital today (Saturday) but only til tomorrow night. The infection started flaring up again on Thursday night and by Friday afternoon the tube tunnel was inflamed again and stood out quite a lot from my surrounding skin. The infectious diseases people came to have another look and said they were going to change my antibiotic but it would mean I was in hospital for another two weeks on IV. On further discussion between the doctors they decided they would try me on a high strength antibiotic in tablet form over the weekend and reassess on Monday. As it was in tablet form (3 tablets every 8 hours) they said I could have weekend leave as long as I didn’t feel sick. If I start feeling unwell I need to return to the hospital sooner but otherwise I don’t need to go back until Sunday evening.
It feels quite weird , being home but knowing it is only temporary – I can’t relax fully. If they think these antibiotics are working they will discharge me on Monday afternoon with a continued course of the antibiotic tablets. If they dont think they have been working the next line of attack is another change of antibiotic and back on IV which means I am then back in hospital for two weeks . Everyone including my doctors is crossing their fingers and hoping that these tablets work.
In other news my radiation treatments went well until Wednesday, but on Thursday they felt they couldn’t line me up enough for the radiation beams to be within the tolerences they allow so they cancelled my radiation treatment until I could get remapped on Friday. My radiation will start again on Monday. Hopefully the rest of my 5 weeks will go according to plan. The actual radiation treatments are agitating Gertrude and she is getting more red and swollen but hopefully the agitation is showing the radiation is having the desired effect.
On Friday I actually had a very busy day as I was the test subject, for registrars sitting their exams to become oncologists, in the morning which involved me having one on one interviews and examinations with both the candidates then them presenting their findings on me and what their treatment plan would be to a panel of oncologists and being quizzed by them on how they would treat me. That was really interesting. It was followed by my remapping for Radiation by CT
By the time I got back up to the ward it was after 1 o’clock . They hooked me up for my usual afternoon antibiotic and when that was finished they then did my herceptin chemo so I was hooked up to the IV for about 3 hours.
Welll thats all the news for now. Hopefully I will be able to write on Monday night that I am home from the hospital for good.