Today I met a fellow IBCer in person for the first time. (yes – I am talking about you L). We had spoken on the phone after being put in touch with each other by my breast surgeon. L is a 9 year survivor of IBC so gives me great hope. But we met this afternoon, it was so nice to just chat, and have someone know exactly what I was talking about. We talked for about 2 1/2 hours and could have talked longer but the coffee shop was closing and we both needed to do other things. It was wonderful just to go blah blah blah and to have someone else go blah blah blah back.
I haven’t joined a breast cancer support group because IBC is so different to normal breast cancer I am not sure that I would get anything out of it, and also because of my experience with the special needs support group that I ended up running because of YD and the sort of person I am, I would end up supporting people more than they were supporting me and I am not strong enough at the moment to deal with that. But the trouble is that there isn’t enough of us IBCers around to have a local support group of our own. I belong to the IBC network that is done by mailing list out of the USA which is also a good source of support and information.
So thank you L for a wonderful afternoon and I’ll shout the drinks next time LOL