Well I finally broke free of the hospital. Came home yesterday afternoon and this morning I found it quite strange not doing things to a timetable and having to think about what I wanted for breakfast. (after having to fill the hospital menu sheet in the day before and being stuck with limited choices).
The days at the hospital weren’t too bad interspersed with visitors and drs rounds and talking to my room-mates. D in her late 70’s and T in her late 50’s. We all agreed it was a good room to be in because we got on quite well. Had fun playing ‘500’ one night with OH (I had got him to bring up some cards) and sis M bought me a new sort of card word game called ‘quiddler’ and she and I had great fun playing that on Saturday afternoon.
I didn’t sleep well on Friday night and resorted to sleeping pills on Saturday and Sunday nights. For some reason I couldn’t get to sleep, my brain just wouldn’t turn off (I wasn’t particularly worried about anything or in pain) and I finally nodded off about 1am which would have been fine if I hadnt been woken for my obs (blood pressure etc) soon after and my IV antibiotics at 4. After going to the loo at 5 (which I had to record as I had been a bit dehydrated when I came in and they were measuring intake and outflow so to speak) I hopped back into bed, grabbed my cellphone to check the time and also use the light of my phone to write by, and dropped my phone on the floor.
I picked it up AND THE SCREEN WAS DEAD – AAAAARRRRGGGGHHHHH!!!!!!!!! As it had been my lifeline as I had basically been stuck in the room due to my blood count, I was pretty upset. I waited til OH had woken up and then rung him -my phone still worked I just couldnt read anything on the screen and I knew his cell no. off by heart. The sweety that he is, he went out and bought me a new phone and delivered it to me on Saturday afternoon. I charged it overnight, and learning my way around it kept me occupied for most of Sunday. I unfortunately had not written down some of my numbers OOPS!!, managed to get most of the family ones off OH, OD and Sis M but was still missing some – so if you are one of my friends reading this and you have my cell no. txt me and let me know who you are if we havent been in contact since Friday.
I’ve written post-it notes to myself and stuck them on the cupboard in the kitchen where our medicines are kept so I remember the order that I have to take the medications that I got sent home from the hospital with. (breakfast, lunch, dinner, and bedtime are all different combinations.) see photo for my morning cocktail of pills. I was joking with one of ODs friends that not only am I a pill popper, when I have chemo etc I’m mainlining my drugs.
I am in the healthy range now for my white cell count but I am being a very conscientious patient and not rushing out to do stuff. OH, MD and I are going away for the weekend to Taupo and I want to be at peak wellness for that. My white cells improved dramatically once we hit the end of the 7-10 days post-chemo that is the bottom of the curve for my white cell count.
One of the reasons we are going to Taupo is that this is the weekend MD can visit her Soulja Boi in Waiouru but she can only see him for a few hours on Sunday afternoon. We will leave on Friday afternoon, spend Friday night and all Saturday doing stuff round Taupo. On Sunday we will make our way down to Waiouru (about an hour or so south) drop MD off for her visit and OH and I will probably spend the afternoon in Ohakune. We will pick MD up and then drive home Sunday night. I am really looking forward to it as especially I missed out on a lovely dinner at Euro (expensive restaurant in Auckland – OH work related dinner) last night.