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    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
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  • SUSAN’S ARMY

    No Princess Alone button

Here we go again

Well In the last two days my hair has definitely decided to leave my head. the grey ones wouldnt you know are the ones that are the most stubborn at hanging on. I can pull several hairs out of my head at a time.  It doesn’t hurt it’s just itchy. My hair is much thinner than it was when I got it cut on Saturday, and I am seeing more of my scalp than I have since I was a baby.  I am intrigued to see whether I will go completely bald or some hornery tufts will stubbornly stay.  Had a quick word with the hairdressers today and will probably go in a couple weeks to have any remaining hair taken down to a no.1 cut. 

I went out today and picked up some more DVDs because I know that the next couple of weeks will be best spent taking things quietly.  I hope the third week will let me get out and do a few things maybe even work a shift at work if I am up to it.  It’s a pity in a way that this week was taken up with my portacath op and recovery from that – because other than the pain and discomfort due to that, I have felt pretty good.

The Wednesday before each chemo treatment I have a oncology assessment appointment.  This is where I see my oncologist or one of his team.  I am lucky to have been able to be put under the care in the public system of the oncologist that I saw privately. Before my first chemo I saw one of his team but yesterday I saw Dr H himself.  He gave us a bit of good news in that he thought  that the lymph nodes in both my neck and armpit were less prominent than they were when he first saw me.  The other couple of interesting things that happened at the appointment were that he got me to sign a form to allow my case to be entered into their case studies.  Apparently they have been collating data on different cases from 2000 to the present and are starting to be able to analyse it to see what is working with treatment etc.  The other thing was he had a med student sitting in on the appointment.  Because IBC is so rare he asked me if the student could have a look and feel of my breast so that he could see what it presents  like.  I am starting to feel very unselfconscious about  my body and felt that it was fine.  I feel if it helps the med student diagnose someone else correctly and rapidly with this then it’s all for a good cause. 

I am not feeling too self-conscious about my hair falling out either.  I wear my hats most of the time that I go out and I think people are more uncomfortable seeing me than I am with them seeing me.  I am not going to shut myself in our house so I think people will just have to deal with it. 

Tomorrow morning I have my 2nd chemo treatment.  After this treatment they will take the tubes, tapes and bandages off my chest and all you will be able to see is two little incisions.  Next time I have chemo they will just put a needle into the port.

Will probably write to my blog on Saturday and let you know how my chemo went.  I have to start taking the steroids and anti-nausea meds again so have to remember my schedule where they are concerned.

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2 Comments

  1. Slave

     /  September 18, 2008

    Hi J.
    We came back from our lovely trip last week. You have to see that country.
    Your OH told me the bad news. I’ll look after him I promise. When my OD sends us the wedding photos you’ll have to come to our place. G will make a nice dinner. Do you like fish ?
    My YD sends a lots of love and very best wishes.
    Keep fighting girl.
    S.

    Reply
  2. Diane dotchin

     /  September 18, 2008

    Hi J

    You are are doing so well

    Go, girl go

    Thinking of you

    D

    Reply

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