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    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
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  • SUSAN’S ARMY

    No Princess Alone button

Oh My God!!! this is really happening to me!!!

It sort of hit me today with going to see the oncologists and the Cancer Society today that this is really happening to me.  I guess I have been so busy ‘organising’ and other things that most of the time it has seemed quite surreal to me.  But with chemo starting on Friday along with the inevitable side effects,  it has really got to me today that this is the end of my life as I knew it.  now there will be life before  Gertrude (BG) and life from today onwards.   What ever happens from here on will be always affected by Gertrude. 

The oncology visit: OH went with me – didn’t learn much more about my treatment other than I need to take steroid tablets the day before, and for a few days after chemo. this is to combat the possibility of allergic reaction to Taxotere,  They measured me and weighed me – to ascertain the dosage of chemotherapy that I will be getting.  they also gave me some anti-nausea medication.  Once I have had my first couple of rounds of chemo  they are hoping to see a reduction in the amount of inflammation I have,  but because of the nature of Gertrude things will be constantly reassessed as treatment goes on.  The steroids have to be taken 12 and 6 hours before chemo so I have to be awake at approx 4am Friday morning to take the second one.  After treatment it is 12 hourly. 

After seeing the oncologist we decided we would pop over to the Cancer Society building and see what resources were available to me  – talked to a lovely nurse there who told me about the things I was entitled to.  The Cancer Society has Liaison nurses who sort out what you need at home in the way of support and also help you to sort out your treatment regime if things arent going quite right in between treatments – I registered for that service.  She will probably be in touch next week to see if I need any support or anything. I also got some books out of the library there to help explain things to YD and a couple of books for me to read as well.  I will probably do a “look good feel better” work shop through them a bit further along in my treatment.  This will help with makeup and wig/scarf tips etc.

Got a lovely text from my youngest sister F today while I was just leaving the hospital today.  Although she lives several hours drive away, she is going to try and come up for my “shave party” and if she cant make it is going to get people to sponsor her to get her hair shaved down where she lives in solidarity with me.  I think its a lovely thought.  I don’t expect people to shave their heads in sympathy with me and have told OH he definitely can’t because I think it wouldn’t suit him but if YSF wants to I am not going to stop her. 

This afternoon I am having my usual afternoon tea with YD then take her to Vibratrain. She knows I am starting my medicine and won’t see her as usual this weekend because the medicine is going to make me not feel very good.  We are still tossing up whether or not to tell her I have cancer or just continue with the whole “sore boob need lots of medicine” story.  I think we will probably tell her when I have lost my hair just in case someone sees me and says something in front of her.

Might write more tomorrow.

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