• Pages

  • comments

    If you have popped over here from my facebook page could you please add comments in the blog rather than on the link on facebook itself. I dont want to worry YD unnecessarily Thanks. You can now use your facebook log in so you dont need to enter extra details if you like
  • All about Gertrude

    Gertrude is the name we decided to call my cancerous breast hence the title of this blog. Although I had to keep my breast through chemo and radiation due to the nature of IBC - once it 'blew up' it no longer looked like my breast and I couldn't wait to get rid of it. Calling it Gertrude was a way of seperating it from myself. This main page is where I write about the general goings on that relate to Gertrude, there is another page that are more a diary of treatments etc This blog is a public blog so although I am being very honest about my battle with Gertrude I have "changed names to protect the innocent" - because everyone can see it if you write comments on the blog pages please use the same abbreviations for other family member or friends that I do. Please feel free to ask questions if you want clarification because then other people who might have been wondering the same thing can read your question and our answers.
  • Abbreviations

    OH- Other Half (Hubby), OD- Oldest Daughter, MD- Middle Daugher, YD- Youngest Daughter, SB- soulja boi MD's fiance in the army (now ex fiance), OD's R OD's partner, BS- Breast surgeon whose initials just happen to be BS as well, BC- our GP (family doctor), Dr H- my medical oncologist, all other friends family etc will be referred to as initials etc
  • Enter your email address to follow this blog and receive notifications of new posts by email.

    Join 60 other followers

  • visitors

  • SUSAN’S ARMY

    No Princess Alone button

In case of emergency

While I have been in treatment for  the last 4 years I have carried a business card holder in my purse with all the hospital contact cards such as this one

card for getting hold of Acute Oncology when I feel sick while on chemo

as well as the contacts for the appointment scheduler, my oncologist, my nurse specialist, my cancer society liason nurse…etc…etc…etc

On Tuesday I had an appointment for counselling at the Cancer Society in the afternoon after attending my uni class in the morning.  I had taken the train up to uni and AW dropped me in Newmarket on her way home after we had attended class and had lunch, so that I could kill time until my appointment at 2pm.  I decided I would be ‘good’ and not  tire myself out by wandering around the shops too much before catching the bus for the short trip to my appointment so I bought a magazine and went to the mall foodcourt and ordered a ‘Tank’ Juice and sat and read at one of the tables.  As I sat there I started having one of my ‘cold & clammy’ dizzy spells.   Dr H says they are caused by the large tumour in my liver -according to him as it has got bigger the inside of the tumour has started being starved of blood supply and has started to break down and every so often it releases the toxins from this cell breakdown into my blood stream which causes the ‘cold clammy spells’

Now usually when I have them when I am sittting down they pass very quickly and I feel capable, even if still feeling a little off colour, of doing what I need to do.  Tuesday was not like that…  As I sat there over a period of quite a few minutes the dizziness got worse and even putting my head down on the table did not remedy the situation.  I had to end up asking the man sitting a couple of tables away from me to go and get someone to help me.  He got one of the foodcourt cleaners to get hold of the centre management who come to help.  I was lucky I was still coherent enough to tell them I didn’t need to go to the hospital I just needed to lie down and help them find OH’s number on my cell phone so they could ring him.  He had to leave work and come and pick me up.  The centre staff were very kind and took me to the management offices where I lay down until OH came.

Quite frankly this episode scared the h*** out of me.  I realised that I needed to have something on me that people could read and understand the situation if I passed out and couldn’t tell them anything.  My solution?  to put a bright sticker on my card holder so that as soon as someone looks in my purse they would be able to get the information to be able to help me.  I composed a card to add to the others explaining what to do in case of emergency and what was wrong with me and added it to the front of the holder.  I know the time is coming when I won’t be able to go out on my own if I continue to get sicker but this at least helps in this interim stage.

the sticker on my ‘cancer card holder’

 

MD was angry at me for not going to the hospital to get checked out but I knew that there was notheing else they could have done for me other than let me lie on a bed until the dizziness passed.  I checked with doctors on Thursday when I went in for chemo whether I should have gone into the hospital and they said probably not but to ring them the next time it happens.  They also checked me out including some motor skills assessment to check that it wasnt anything more sinister.

The one thing they did find that was different from normal was my blood pressure was a lot more elevated than normal and they are wondering whether that contributed to Tuesday’s episode.  I have had to go to the GP’s on Friday and Saturday to get it checked to see if it remains elevated or whether it is falling back to more normal levels. So far it is remaining elevated.  This shouldnt be a chemo or other medication side effect but if it remains high it will need to be investigated and controlled.

About these ads
Previous Post
Leave a comment

4 Comments

  1. Hey Jenny
    I often read but don’t leave messages. I hope that this is just a minor episode. Just wanted to let you know that I was thinking about you and wishing ion my heart that there was no cancer and that everyone was able to live a full life without that fear.
    We had a week in GoldCoast two weeks ago only to find that my second brother has been diagnosed with prostate cancer. he is very scared and undergoing all the tests associated to confirm and find out how bad it is. He had a PSA level of 32. He had it checked in October and was clear. The good news is that his blood and bones a clear of cancer and he has surgery on 31st May. We are hoping that his scenario will be better than David’s. Glenn is 18months younger than me while David was twelve months older. Mind you he has said his first thoughts were not for him but for his wife and his family. His youngest is a special needs eleven year old.
    I remembered how we first met and the connections we have discovered since then. I do hope that there are some miracles coming your way.
    Lots of love and hugs
    Cheryl

    Reply
  2. Pleased you were coherent enough to get the help you needed. Hope this is a blimp…

    Reply
  3. I’m sorry for your frightening experience. Thanks for sharing about it, though, because I think you raise an important issue and offer a good solution with your bright sticker.

    Reply
  4. it never ceases to amaze me how organized you are through even your weakest moments. i wish i was there to shop with you! i’d keep an eye on you – i promise.much love to you!

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: