I am pissed off to say the least. After waiting all this time for a radiation oncology appointment, I finally went yesterday only to be told that because of the position of the node they can’t do radiation to it. Although the node itself is just adjacent to the radiation field from last time the angle they would have to target it from crosses skin and bone that already has had its lifetime dose of radiation and if they radiate more it is too high a risk of killing off my skin and bone in that area leaving me with tissue that will necrotise and ulcerate. Ahh no thanks.
OH has redrawn the diagram that they drew to explain it to us this diagram shows things as if looking up from my stomach
OH's reproduction of sketch they did to explain why no more radiation
I had psyched myself up for radiation and promptly burst into tears when they told me they couldn’t do it. They are referring me back to Dr H as chemo is my only other option. So I now have to wait to get that appointment.
What chemo they will put me on – I don’t know
how long for – I don’t know
whether I’ll lose my hair again – I don’t know.
how they are going to administer it when I have only one good arm for IV’s etc - I don’t know
To say this is frustrating is an understatement but as I was saying to OH if it is a choice between chemo and letting the cancer spread by leaving the node alone then I’ll take the chemo thanks. I would have much preferred the radiation but that isn’t an option!
Now its again living in limbo until I get the next appointment with Dr H. and he tells me what my options are for chemo.
I am still going ahead with applying to University - I am hopeful what ever treatment I need will be finished by the start of the University year in March next year. I’ll apply as a fulltime student but if I have to do a reduced papers workload so be it. I am not going to sit on my backside doing nothing. I am working a couple of shifts at my old work this week helping them out so at least I will be keeping myself occupied until I know more of what is going on.
1 Comment
November 7, 2009 at 6:22 am
Oh Shit – Keep chin up – keep making plans – I reckon positive thinking is the best way to go !!!